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UPMC Resources:


http://www.upmc.com/services/neurologyservices
University of Pittsburgh Medical Center (UPMC) Phone 412-647-UPMC (8762) or toll free 1-800-533-UPMC (8762)

http://www.cat.pitt.edu
University of Pittsburgh Medical Center (UPMC) Center for Assistive Technology (CAT) can provide ALS patients with a bridge to independence and an opportunity to live life to its fullest through assistive devices. 

http://www.herlpitt.org
Human Engineering Research Laboratories, VA Pittsburgh Healthcare System.  Research projects, information on adapting to daily life as a wheelchair user.

http://www.rehabmedicine.pitt.edu/
University of Pittsburgh Department of Physical Medicine & Rehabilitation

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Local/Community Resources:

http://www.cure4als.org
The ALS Association Western Pennsylvania and West Virginia Chapter

http://www.wpahs.org/hospice/
Forbes Hospice's team of caregivers offers a compassionate, loving approach to meeting the needs of patients and families. 

http://www.knoppneurosciences.com/
Knopp Neurosciences Inc. isa biotechnology company with a mission to accelerate the diagnosis and improve the treatment of ALS.

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National Resources:


http://www.alsa.org/
The ALS Association (ALSA) is a national not-for-profit health organization providing help to those facing the disease through research, patient and community services, public education and advocacy. 

http://www.als-mda.org/
The Muscular Dystrophy Association (MDA) is a world leader in fighting ALS. The ALS Division of MDA offers a comprehensive range of services and joins in the search for treatments and a cure.

http://www.als.net/
The ALS Therapy Development Foundation (ALS TDF) combines the passion and dedication of a nonprofit organization with the entrepreneurial and scientific spirit of a biotechnology company.  

www.bruceedwardsfoundation.org/index.htm
The Bruce Edwards Foundation for ALS Research provides funds to medical research facilities dedicated to slowing the progression of and finding a cure for Amyotrophic Lateral Sclerosis (ALS). The Foundation was created in 2006, in memory of Bruce Edwards, who died from ALS in April 2004 at the age of 49 after a 16-month struggle against the disease. Bruce was the longtime friend and caddy of PGA golfer Tom Watson.

http://www.ninds.nih.gov/
The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. NINDS is one of many research centers and institutes that comprise the National Institutes of Health (NIH), which is an agency of the Public Health Service within the U.S. Department of Health and Human Services. 

http://www.projectals.org/
Project A.L.S. is a not-for-profit organization dedicated to finding and funding treatment and a cure for ALS.

http://www.alsfamily.org/
The ALS Family Charitable Foundation provides resources for ALS patients, families, and caregivers.  

http://www.prestostore.com/cgi-bin/storefront.pl?ref=villagern
The CareGiver Village is an on-line store offering products that make life a little easier for ALS families. 

http://www.patientslikeme.com/welcome/community/als
Patients Like Me is an online community committed to making a difference for patients and their health.

http://www.nfcacares.org
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

http://www.caregiving.org/
The National Alliance for Caregiving is dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers

http://www.wellspouse.org/
Well Spouse Foundation . . . When one is sick . . . two need help! 

http://www.nahc.org/
National Association for Home Care (NAHC) is the nation's largest trade association representing the interests and concerns of home care agencies, hospices, home care aide organizations, and medical equipment suppliers. Simply put, NAHC is the one organization dedicated to making home care and hospice providers lives easier.

http://www.nhpco.org/
The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.

http://chtop.org/ARCH/National-Respite-Locator.html
The National Respite Locator Service
helps parents, caregivers, and professionals find respite services in their state and local area to match their specific needs.